All of Us Research Program

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Description
The All of Us Research Program is a historic effort to gather information from one million or more people living in the United States. All of Us is a research program funded by the National Institutes of Health (NIH).

The mission of the All of Us Research Program is to accelerate health research and medical breakthroughs, enabling individualized prevention, treatment, and care for all of us.
This study requires

What will we ask you to do? First, we will ask you to consent to participate in the study and to share your data with us. This is completed on a computer.

If you decide to join All of Us Research Program, we will gather data about you. We will gather some of the data from you directly. We will gather some of the data from your electronic health records.

We will ask you to answer questions on the computer. We will ask you for data like your name, date of birth, and contact information. We will also ask questions about your health, family, home, and work.

We will ask you to come to UCSF for a visit so that we can measure you. Measurements may include height, weight, blood pressure, and heart rate. We will ask you to give a blood and urine sample after we take your physical measurements.

We will ask you to allow us to access your health records.

Will we ask you to do anything else? We may also ask you to answer other questions periodically on the computer.

Who can participate

Anyone 18 years or older is welcome to participate in the All of Us Research Program.

Those who are not eligible to join at this time include people who are in prison, unable to consent on their own, and younger than 18. In the future, we hope to enroll these populations.

Benefits and risks of participating
###Benefits of Participating:

The All of Us Research Program is not medical treatment. You will not get direct medical benefit from taking part in All of Us Research Program.

That said, you may indirectly benefit from taking part in All of Us. For example, we will provide ways for you to get access to all of the data you share with us and some of the results about you. This information may be interesting to you.

You may learn about your health. You will be able to share your All of Us information with your health care provider if you choose. Finally, you will be helping researchers make discoveries that may help future generations.

###Risks of Participating:

The main risk of taking part in All of Us is to your privacy. A data breach is when someone sees or uses data without permission. If there is a data breach, someone could see or use the data we have about you.

We will gather data from you through the All of Us app and/or website. You may be asked to wear a fitness tracker. There is a risk to your privacy whenever you use an app, website, or fitness tracker.

Researchers will use basic facts like your race, ethnic group, and sex in their studies. This data helps researchers learn if the things that affect health are the same in different groups of people.

If you give a blood sample, the most common risks are brief pain and bruising. Some people may become dizzy or feel faint. There is also a small risk of infection.

Taking part in All of Us may have risks that we don’t know about yet. We will tell you if we learn anything that might change your decision to take part.
Compensation
$25 gift card upon completion of your visit
Resources
Schedule
Study duration and period
An in-person visit of about 2 hours. Providing online updates to your health and lifestyle information from time to time. The entire research program is designed to last 10 years or more.
Recruitment period
From April 9, 2018 to March 31, 2023
UCSF Mount Zion
1600 Divisadero Street
Room #A645
San Francisco, CA 94115