In-Home Autism Study

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"Are you a parent of a child with Autism?"
Age: 1-17
Gender:
Any
Healthy Volunteers: No
Keywords: parents, children, autism, autism spectrum disorder
Type: survey
Investigator:
Description
Researchers at the UC Davis MIND Institute are collaborating with the Hartwell Foundation, Stanford University and Case Western University to reach thousands of families who are managing the challenges of caring for a child with an Autism Spectrum Disorder diagnosis. As its name implies, Autism Spectrum Disorder (ASD) represents a spectrum of symptoms, behaviors and associated features that medical science generally refers to as autism. It is the goal of the "Kids First" initiative to create a detailed classification of ASD that will more accurately reflect each individual's behavior and personality. With this new approach, researchers will be able to dig beyond the surface features of the disorder, to enact personalized, targeted approaches for care and interventions that will be more successful than what is available today.
This study requires

Families will be asked to enroll in the online database and complete questionnaires regarding demographic and behavioral information (will take approximately 10-30 minutes)

All participation is done from the participant's home

Who can participate

Parents of a child with: A clinical diagnosis of Autism spectrum disorder (ASD); and who is between the ages of 12 months to 17 years; and is proficient in the English language

Compensation
There is no compensation for participating in this study.
Resources
Schedule
Study duration and period
10-30 minutes to complete the survey. Families will be invited to participate in additional study phases, but participation is voluntary.
Recruitment period
From Sept. 19, 2018 to Sept. 18, 2019
Contact
Brittani Phillips

Have any questions or want to learn more? Leave your contact details below and the research team will reach out to you.


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