Long-Term Follow-Up of Patients Who Have Participated in Children's Oncology Group Studies

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Age: -1 years or older
Gender:
Any
Healthy Volunteers: No
Keywords: cancer, oncology, children
Type: Procedure study
Investigator:
Description
This study is organized by Children’s Oncology Group (COG). COG is an international research group that conducts clinical trials for children with cancer. More than 200 hospitals in North America, Australia, New Zealand, and Europe are members of COG.
Incredible progress has been made in treating childhood cancer. With all this success has come a need to monitor patients’ health status and quality of life years after their treatment is finished. Following the progress of patients over many years (called long-term follow-up) is needed to identify problems that patients treated for childhood cancer may face. However, treatment centers often lose contact with many of their patients after they finish treatment. The longer the time since treatment has finished, the less likely the patient’s treatment center will have the patient’s current contact information. Over time, patients may move, change their names, and receive follow-up care less often or at different locations. Things like this make it difficult for treatment centers to have up to- date contact information for their patients.

This clinical trial keeps track of and collects follow-up information from patients who are currently enrolled on or have participated in a Children's Oncology Group study. Developing a way to keep track of patients who have participated in Children's Oncology Group studies may allow doctors learn more about the long-term effects of cancer treatment and help them reduce problems related to treatment and improve patient quality of life.
Resources
Schedule
Recruitment period
From Nov. 10, 2011
Research Topic
Conditions:
  • Acute Lymphoblastic Leukemia
  • Brain Neoplasm
  • Hodgkin Lymphoma
  • Rhabdomyosarcoma

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