Parent Representatives Needed to Advise a Study on the Use of Telehealth for Treating Injured Children in Emergency Rooms

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"Has your child been treated in the emergency room for a traumatic injury?"
Age: 18 and older
Gender:
Any
Healthy Volunteers: No
Keywords: pediatrics, trauma, children, clinical research, family centered, patient centered, advisory board, telemedicine, telehealth
Type: Family Advisory Board (FAB)
Target:
10 Participants
Investigator:
Description
ABOUT THE PROJECT

We are looking for parents and guardians to help us design a research study. The study will look at how the use of telehealth for treating injured children in the emergency room impacts the family experience.

WHAT IS TELEHEALTH?

Telehealth allows local emergency rooms to use video conferencing to connect families and their local doctors with pediatric trauma experts in Sacramento for cases involving seriously injured children.
This study requires

This study requires the UC Davis clinical research team to organize a Family Advisory Board, consisting of parents from the communities served by the 10 partner hospitals in the study. This group will represent the viewpoints of parents in the regions covered by the study and provide valuable input to ensure that the study is responsive to family needs and concerns.

Family Advisory Board members will:

• commit to participating in four meetings (online/in-person) per year from 2020 - 2023.

• share their background and experience taking their child to the emergency room.

• offer opinions and advice about better clinician-patient communication.

• review research materials and provide feedback to researcher requests via email or phone. *No prior knowledge of research is required to serve on the Family Advisory Board.

• assist the research team in addressing potential barriers and challenges related to enrollment and survey completion for the larger clinical study. (E.g., What challenges might parents face in deciding to enroll in this study?)

• review the feasibility and appropriateness of the project from the parent perspective. (E.g., How can this study be more practical? What information gained is most useful?)

• provide feedback on cultural and linguistic appropriateness of research documents and processes from the parent perspective.

• evaluate the goals of the study and review the research team's progress throughout the course of the study.

Your expertise is based on your lived experience in your particular community and your first-hand experience caring for your child(ren) during the emergency visit. The point of the study is to improve family/patient communication with the local doctors and remote doctors. The research team values your opinions and your experience and would like to incorporate your feedback into the study in the hopes that it can be more relevant.

Although the emphasis is on your lived experience, we will provide some introductory information and training about how research works and what certain terms mean. If you are interested, please contact Bethney Bonilla or Dominique Ritley at familyadvisoryboard@ucdavis.edu or (530) 278-6950.

Do you know someone who might be interested in joining our Family Advisory Board? Please share this link: https://studypages.com/s/parent-representatives-needed-to-advise-a-study-on-the-use-of-telehealth-for-treating-injured-children-in-emergency-rooms-323863/

Who can participate

Please join us, if you:

• have at least one child who has been seen in an emergency room for a traumatic injury in the last five years

• are able to commit to attending four meetings (online/in-person) per year from 2020 - 2023

• live in one of the following counties: Butte County, El Dorado County, Nevada County, Sacramento County, San Joaquin County, Shasta County, Sutter County, Yolo County, or Yuba County

Benefits and risks of participating
Benefits of becoming a FAB member include:

• payment for time spent on FAB work including expenses (i.e., transportation, childcare costs during meetings, etc.) ~$800/year plus travel expenses

• ensuring the patient and caregiver perspectives are understood by researchers

• improving the research study

There are minimal physical, psychological, social, legal, and economic risks to participants involved in this study. Questions about a child's physical (traumatic) injury can potentially cause concern to participants. Study staff will be trained in procedures for addressing participant distress, discomfort, or disclose of risk, which includes notifying the PI right away. If the subject of your child's physical (traumatic) injury is upsetting for you, you may not want to participate in this study.
Compensation
≈ $800/year plus travel expenses

We will compensate FAB members for up to 32 hours each year at a rate of $25/hour (32 hours x $25/hour = $800/year).

FAB members will also receive coverage for out-of-pocket expenses as a result of participating in this research project. These expenses include but are not limited to travel expenses, gas reimbursement, lodging, and childcare.
Resources
PDF Docs
UC Davis Family Advisory Board Flyer
Schedule
Study duration and period
FAB members will advise clinical researchers from September 2020 - May 2023. FAB members will commit to participating in four meetings per year from 2020-2023. Meetings will last between 2-4 hours each and will be held by videoconference or in Sacramento (depending on the status of the COVID-19 pandemic). In addition to meetings, members will be asked to devote approximately 20 hours each year reviewing research materials and responding to feedback and requests via email or phone (for which you'll be compensated).
Recruitment period
From June 1, 2020 to Aug. 14, 2020
Location
Center for Healthcare Policy and Research
2103 Stockton Boulevard
Sacramento, CA 95817
Research Topic
Conditions:
  • pediatrics
  • trauma
  • children
  • telemedicine
  • telehealth

Have any questions or want to learn more? Leave your contact details below and the research team will reach out to you.


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