Study on Language Development in Young Adults with Fragile X Syndrome

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Age: in, entering, or just out of last year of HS
Keywords: fragile X syndrome, FXS, language
Type: Behavioral
The goal of the study is to learn more about how certain abilities (e.g. memory), certain types of experiences (e.g. interactions with family), and biology affect language abilities in adulthood for both males and females with fragile X syndrome. We are also interested in understanding how these factors and language/literacy skills affect the abilities of these young adults to function independently. Such information will help us suggest ways to improve instruction, therapy, and support to help youth fragile X to successfully transition from school to the demands of adult life.
This study requires

4 assessment visits over a 3-year period. Two visits will be completed at one of our study sites and two will be completed from home.

Who can participate

Males and females with fragile X syndrome in, entering, or just out of their last year of high school or transition program.

Families will receive a $50 honorarium and the participant will receive a $5 gift card from a national retail store for each visit to the MIND Institute.
Study duration and period
4 assessment visits over a 3-year period.
UC Davis MIND Institute
2825 50th Street
Sacramento, CA 95817

Have any questions or want to learn more? Leave your contact details below and the research team will reach out to you.


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