"Help improve the lives of future generations. Register today to participate in research!"
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6 months- 45 years
autism, genetic disorders, fragile X syndrome, neurodevelopmental disorders, down syndrome, ADHD
This registry is designed to match potential volunteers with the MIND Institute's human research studies. Your participation in this research plays a vital role in improving awareness, understanding, prevention, care, and treatment of neurodevelopmental disorders.
Who can participate?
Anyone can participate who has a clinical diagnosis including, but not limited to, a diagnosis of Autism Spectrum Disorder (ASD), Attention Deficit Hyperactive Disorder (ADHD), Down syndrome, Fragile X syndrome and 22q11.2 deletion syndrome. We are also recruiting participants with no diagnosis (typically developing). Each participant will also need to meet additional criteria established by our research studies.
You may register yourself, your children, parents, siblings and spouse. You must be the legal guardian of the person you are registering.
Benefits and risks of participating
By volunteering in the Research Volunteer Registry and participating in research studies, you play a significant role in helping researchers better understand neurodevelopmental disorders that affect many people. Your participation is vital when it comes to improving diagnostic testing, finding better treatments, and hopefully the prevention of various neurodevelopmental conditions.
Participation in our studies does not require medical insurance. You do not need to be a current patient at the MIND Institute, or within the UC Davis Health System, to participate in the Research Volunteer Registry. The information in the Research Volunteer Registry is not connected to UC Davis Health System electronic medical records.