Vietnamese Caregiver Intervention Study

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"Helping caregivers care for people with dementia"
Age: 21 and older
Gender:
Any
Healthy Volunteers: Yes
Keywords: alzheimer's disease, cognitive impairment, caregivers, vietnamese, dementia
Type: Behavioral study
Target:
72 Participants
Investigator:
Description
The purpose of this study is to test a new strategy that aims to reduce stress for Vietnamese caregivers. Their family members may have dementia or problems with memory loss/confusion and improve mood for the care recipient. The strategy used will depend on which of the two treatment groups your family is assigned to.

The strategy will consist of:
- Education on Alzheimer’s disease and managing problem behaviors.
- Tai Chi
- Discussion of cultural influences on dementia.
- Accessing resources for caregivers.
- Ways to find support.
This study requires

As a caregiver, you will be provided either with: - “in-person support” or - "distance support." This is support via educational materials and resources we will give to you to take home and read at your own convenience.

If you are selected for the "distance support" initially, you may join the in-person support program about three months after you enroll.

For the in-person support, the primary caregiver will be asked to participate in six weekly meetings, lasting about 2 hours each. These are group-like classes to help you learn more about memory loss, confusion, and dementia in older adults. You will also learn ways to manage your relative’s problems and hopefully to reduce your stress. We will also talk about how you can find resources (e.g., respite care), and support from other family members. The last part of the in-person support will consist of breathing exercises and/or Tai Chi. During classes, our community partners will provide care for your care recipient if necessary. Secondary caregivers are encouraged to join at least the education/support portion of each class but can come as their schedule allows.

Regardless of treatment assignment, as a primary caregiver, you will fill out some questionnaires (1) before the intervention (at baseline), (2) immediately after the intervention (about six weeks from the first set of questionnaires), and (3) three months after the intervention.

Each set of questionnaires will take 30-45 minutes.

Who can participate

Inclusion criteria:

  • Caregivers will be included if they (a) are Vietnamese; (b) are age 21+; (c) speak Vietnamese and/or English (d) provide day-to-day, hands on care to a family member with Alzheimer's disease (AD) or cognitive impairment related to AD (e) have at least one family member who will also participate in the intervention; (f) volunteer informed consent; (g) are physically able to participate; and (g) expect to stay in the Sacramento area for the duration of the study
  • Care recipients will be included if they are (a) Vietnamese; (b) are age 21+; (c) have reported Alzheimer's disease (AD) or cognitive impairment related to AD; (d) have at least one caregiver who is participating in the intervention (e) volunteer informed consent or surrogate consent, and (f) expect to stay in the Sacramento area for the duration of the study

Exclusion criteria:

  • If the care recipient expresses dissent to participation or to the use of surrogate consent, then he/she will be excluded from the study.
Benefits and risks of participating
BENEFITS:

You will learn more about your relative’s problems, and be educated about where to find resources. If you are a part of the in-person support classes, you may benefit from talking to other caregivers and/or by learning breathing and movement techniques to reduce your stress and feel better. Your care recipient may report better mood.


RISKS:

During the education classes, you might experience some discomfort or embarrassment when talking publicly about your care recipient’s problems. During the Tai Chi exercise (if it's part of the class), you may feel physically tired or inadvertently injure yourselves. You may choose to stop your participation at any time due to psychological or physical distress.
Compensation
You will be compensated via gift card for your time.
Resources
PDF Docs
Trang thông tin (Informational Flier)
Schedule
Study duration and period
We expect that you will be in this research study for approximately 9-10 months.
Recruitment period
From May 11, 2015 to May 24, 2019
Location
UC Davis Neurology Department
4860 Y Street
Sacramento, CA 95817
Research Topic
Conditions:
  • Alzheimer's Disease (Incl Subtypes)
  • Cognitive Impairment

Have any questions or want to learn more? Leave your contact details below and the research team will reach out to you.


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